journal
https://read.qxmd.com/read/38408851/-empathy-counterbalancing-to-mitigate-the-identified-victim-effect-ethical-reflections-on-cognitive-debiasing-strategies-to-increase-support-for-healthcare-priority-setting
#21
JOURNAL ARTICLE
Jilles Smids, Charlotte H C Bomhof, Eline Maria Bunnik
Priority setting is inevitable to control expenditure on expensive medicines, but citizen support is often hampered by the workings of the 'identified victim effect', that is, the greater willingness to spend resources helping identified victims than helping statistical victims. In this paper we explore a possible cognitive debiasing strategy that is being employed in discussions on healthcare priority setting, which we call 'empathy counterbalancing' (EC). EC is the strategy of directing attention to, and eliciting empathy for, those who might be harmed as a result of one-sided empathy for the very ill who needs expensive treatment...
February 26, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38408850/ladders-and-stairs-how-the-intervention-ladder-focuses-blame-on-individuals-and-obscures-systemic-failings-and-interventions
#22
JOURNAL ARTICLE
Tyler Paetkau
Introduced in 2007 by the Nuffield Council on Bioethics, the intervention ladder has become an influential tool in bioethics and public health policy for weighing the justification for interventions and for weighing considerations of intrusiveness and proportionality. However, while such considerations are critical, in its focus on these factors, the ladder overemphasises the role of personal responsibility and the importance of individual behaviour change in public health interventions. Through a study of vaccine hesitancy and vaccine mandates among healthcare workers, this paper investigates how the ladder obscures systemic factors such as the social determinants of health...
February 26, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38395623/genetic-disenhancement-and-xenotransplantation-diminishing-pigs-capacity-to-experience-suffering-through-genetic-engineering
#23
JOURNAL ARTICLE
Daniel Rodger, Daniel J Hurst, Christopher A Bobier, Xavier Symons
One objection to xenotransplantation is that it will require the large-scale breeding, raising and killing of genetically modified pigs. The pigs will need to be raised in designated pathogen-free facilities and undergo a range of medical tests before having their organs removed and being euthanised. As a result, they will have significantly shortened life expectancies, will experience pain and suffering and be subject to a degree of social and environmental deprivation. To minimise the impact of these factors, we propose the following option for consideration-ethically defensible xenotransplantation should entail the use of genetic disenhancement if it becomes possible to do so and if that pain and suffering cannot be eliminated by other means...
February 23, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38395622/fetuses-are-not-adult-humans-a-response-to-miller-on-abortion
#24
JOURNAL ARTICLE
Ben Saunders
Miller has recently argued that fetuses have the same inherent value as non-disabled adults. However, we do not need to postulate some property possessed equally by all humans, including fetuses, in order to explain the equality of non-disabled adults. It would suffice if there were some property possessed by all non-disabled adults, but not by fetuses.
February 23, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38383152/mitochondrial-replacement-techniques-for-treating-infertility
#25
JOURNAL ARTICLE
Esther Braun
Mitochondrial replacement techniques (MRTs) usually aim to prevent the genetic transmission of maternally inherited mitochondrial diseases. Until now, only the UK and Australia have implemented specific legal regulations of MRTs. In both countries, clinical trials on these techniques are only permissible for cases with a high risk of severe mitochondrial disease in the offspring. However, these techniques can also be applied to treat infertility, especially for older women with impaired oocyte quality. In some countries without legal regulation of these techniques, MRTs are already offered for this purpose...
February 21, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38383151/medical-authority-and-expectations-of-conformity-crystallising-a-key-barrier-to-person-centred-care-during-labour-and-childbirth
#26
JOURNAL ARTICLE
Anna Nelson
Those giving birth within modern maternity systems are recognised as facing a number of barriers to person-centred care. In this paper, I argue that in order to best facilitate the conditions for positive change, work needs to be done to provide a more granular articulation of the specific barriers. I then offer a nuanced and contextually aware articulation of one key component of the overall failure to ensure person-centred care: medical authority and the expectation of conformity. Articulating these barriers with increased specificity is valuable, as it creates a stronger foundation from which to challenge existing problems which serve to constrain the autonomy of birthing individuals...
February 21, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38383150/aapt-pregnancy-loss-and-planning-ahead
#27
JOURNAL ARTICLE
Victoria Adkins, Elizabeth Chloe Romanis
No abstract text is available yet for this article.
February 21, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38383149/ai-doping-and-ethics-on-why-increasing-the-effectiveness-of-detecting-doping-fraud-in-sport-may-be-morally-wrong
#28
JOURNAL ARTICLE
Thomas Søbirk Petersen, Sebastian Jon Holmen, Jesper Ryberg
In this article, our aim is to show why increasing the effectiveness of detecting doping fraud in sport by the use of artificial intelligence (AI) may be morally wrong. The first argument in favour of this conclusion is that using AI to make a non-ideal antidoping policy even more effective can be morally wrong. Whether the increased effectiveness is morally wrong depends on whether you believe that the current antidoping system administrated by the World Anti-Doping Agency is already morally wrong. The second argument is based on the possibility of scenarios in which a more effective AI system may be morally worse than a less effective but non-AI system...
February 21, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38373831/the-ethical-canary-narrow-reflective-equilibrium-as-a-source-of-moral-justification-in-healthcare-priority-setting
#29
JOURNAL ARTICLE
Victoria Charlton, Michael J DiStefano
Healthcare priority-setting institutions have good reason to want to demonstrate that their decisions are morally justified-and those who contribute to and use the health service have good reason to hope for the same. However, finding a moral basis on which to evaluate healthcare priority-setting is difficult. Substantive approaches are vulnerable to reasonable disagreement about the appropriate grounds for allocating resources, while procedural approaches may be indeterminate and insufficient to ensure a just distribution...
February 19, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38373830/extending-patient-centred-communication-to-non-speaking-intellectually-disabled-persons
#30
JOURNAL ARTICLE
Ally Peabody Smith, Ashley Feinsinger
Patient-centred communication is widely regarded as a best practice in contemporary medical care, both in terms of maximising health outcomes and respecting persons. However, not all patients communicate in ways that are easily understood by clinicians and other healthcare professionals. This is especially so for patients with non-speaking intellectual disabilities. We argue that assumptions about intellectual disability-including those in diagnostic criteria, providers' implicit attitudes and master narratives of disability-negatively affect communicative approaches towards intellectually disabled patients...
February 19, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38373829/designing-ai-for-mental-health-diagnosis-challenges-from-sub-saharan-african-value-laden-judgements-on-mental-health-disorders
#31
JOURNAL ARTICLE
Edmund Terem Ugar, Ntsumi Malele
Recently clinicians have become more reliant on technologies such as artificial intelligence (AI) and machine learning (ML) for effective and accurate diagnosis and prognosis of diseases, especially mental health disorders. These remarks, however, apply primarily to Europe, the USA, China and other technologically developed nations. Africa is yet to leverage the potential applications of AI and ML within the medical space. Sub-Saharan African countries are currently disadvantaged economically and infrastructure-wise...
February 19, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38365284/the-wrong-word-for-the-job-the-ethics-of-collecting-data-on-race-in-academic-publishing
#32
EDITORIAL
John McMillan, Brian D Earp, Wing May Kong, Mehrunisha Suleman, Arianne Shahvisi
No abstract text is available yet for this article.
February 16, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38350711/pregnancy-loss-care-should-not-be-biased-in-favour-of-human-gestation
#33
JOURNAL ARTICLE
Andrea Bidoli
No abstract text is available yet for this article.
February 13, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38350710/addressing-or-reinforcing-injustice-artificial-amnion-and-placenta-technology-loss-sensitive-care-and-racial-inequities-in-preterm-birth
#34
JOURNAL ARTICLE
Sophie L Schott, Faith Fletcher, Alice Story, April Adams
No abstract text is available yet for this article.
February 13, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38346870/courts-rights-and-the-critically-brain-injured-patient
#35
JOURNAL ARTICLE
Barry Lyons, Mary Donnelly
The reality of current clinical practice in the UK is that where a patient's family refuses to agree to testing for brain stem death (BD), such cases will ultimately end up in court. This situation is true of both adults and children and reinforced by recent legal cases. While recourse to the courts might be regrettable in such tragic cases, if public trust in the medical diagnosis of BD is to be maintained all aspects of the process must be conducted in a way that is transparent and open to scrutiny. This is not an 'ineffective expenditure' of resources, but an essential element of a human rights-compliant legal system...
February 12, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38342498/ethical-argument-for-establishing-good-manufacturing-practice-for-phage-therapy-in-the-uk
#36
JOURNAL ARTICLE
Mehrunisha Suleman, Jason R Clark, Susan Bull, Joshua D Jones
Antimicrobial resistance (AMR) poses an increasing threat to patient care and population health and there is a growing need for novel therapies to tackle AMR. Bacteriophage (phage) therapy is a re-emerging antimicrobial strategy with the potential to transform how bacterial infections are treated in patients and populations. Currently, in the UK, phages can be used as unlicensed medicinal products on a 'named-patient' basis. We make an ethical case for why it is crucially important for the UK to invest in Good Manufacturing Practice (GMP) for both ongoing unlicensed and future licensed phage therapy...
February 11, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38326021/overcoming-false-dichotomies-to-address-ethical-issues-of-artificial-placentas
#37
JOURNAL ARTICLE
Alice Cavolo
No abstract text is available yet for this article.
February 7, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38326020/procreative-loss-without-pregnancy-loss-the-limitations-of-fetal-centric-conceptions-of-pregnancy
#38
JOURNAL ARTICLE
Hannah Carpenter, Georgia Loutrianakis, Peyton Baker, Tiffany Bystra, Lisa Campo-Engelstein
No abstract text is available yet for this article.
February 7, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38320849/pregnancy-loss-in-the-context-of-aapt-speculation-over-substance
#39
JOURNAL ARTICLE
Susan Kennedy
No abstract text is available yet for this article.
February 6, 2024: Journal of Medical Ethics
https://read.qxmd.com/read/38320848/ethical-preparedness-in-genomic-medicine-how-nhs-clinical-scientists-navigate-ethical-issues
#40
JOURNAL ARTICLE
Kate Sahan, Kate Lyle, Helena Carley, Nina Hallowell, Michael J Parker, Anneke M Lucassen
Much has been published about the ethical issues encountered by clinicians in genetics/genomics, but those experienced by clinical laboratory scientists are less well described. Clinical laboratory scientists now frequently face navigating ethical problems in their work, but how they should be best supported to do this is underexplored. This lack of attention is also reflected in the ethics tools available to clinical laboratory scientists such as guidance and deliberative ethics forums, developed primarily to manage issues arising within the clinic...
February 6, 2024: Journal of Medical Ethics
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