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Disability and Rehabilitation

Saskia Steinheimer, Jonas F Dorn, Cecily Morrison, Advait Sarkar, Marcus D'Souza, Jacques Boisvert, Rishi Bedi, Jessica Burggraaff, Peter Kontschieder, Frank Dahlke, Abigail Sellen, Bernard M J Uitdehaag, Ludwig Kappos, Christian P Kamm
PURPOSE: Clinical ordinal rating scales of movements, e.g., the Expanded Disability Status Scale, have poor intra- and interrater reliability, are insensitive to subtle differences and result in coarse-grained ratings compared to relative comparative rating methods. We therefore established video-based setwise comparison as a fine-grained, reliable and efficient rating method of motor dysfunction using algorithmic support. MATERIALS AND METHODS: Eight neurologists rated a set of 40 multiple sclerosis patient videos of the Finger-to-Nose-Test using both the newly developed setwise comparison and the established pairwise comparison techniques, which result in a continuous rating scale...
February 20, 2019: Disability and Rehabilitation
Kajsa Lidström Holmqvist, Marie Holmefur, Patrik Arvidsson
PURPOSE: The Weekly Calendar Planning Activity is a performance test aiming to examine how subtle problems with executive functioning influence the performance of multi-step activities in daily life. The purpose of this study was to explore the Swedish version of the Weekly Calendar Planning Activity, regarding test-retest reliability and possible learning effects. MATERIAL AND METHODS: Twenty-four adults with psychiatric, neurodevelopmental or mild intellectual disorders and with difficulties in executive functioning performed the test on three separate occasions, with two weeks apart...
February 20, 2019: Disability and Rehabilitation
Timothy F Marshall, Catherine M Alfano, Alix G Sleight, Richard P Moser, David S Zucker, Elise L Rice, Julie K Silver, Vishwa S Raj, Jack B Fu, Lynne S Padgett, Kathleen Doyle Lyons, Mary Vining Radomski, Raymond McKenna, Mackenzi Pergolotti
PURPOSE: To build consensus around an optimal patient-reported outcome measure of cancer symptoms and patient needs to facilitate patient-provider communication and trigger referrals to supportive services. METHODS AND MATERIALS: The Grid-Enabled Measures platform was used to crowdsource and facilitate collaboration to achieve consensus. Respondents were invited to nominate and independently rate the usefulness of measures that: (1) have been actively used at a healthcare institution, (2) have a multiple choice or yes/no type format, (3) are applicable to adults with cancer, (4) are patient-reported, and 5) have psychometric data if possible...
February 19, 2019: Disability and Rehabilitation
Ellen M C Borghuis, Michiel F Reneman, Henrica R Schiphorst Preuper
BACKGROUND: Pain rehabilitation programs are recommended interventions for patients with chronic pain. Average effect sizes are moderate. Physiatrists, based on clinical experience, argue that the present outcome measures underestimate the outcome of pain rehabilitation programs. OBJECTIVE: (1) To explore discrepancies and relationships in outcomes of pain rehabilitation. (2) To explore causes of discrepancies from the perspective of patients. METHOD: A mixed-method, prospective cohort study of patients who participated in pain rehabilitation programs...
February 19, 2019: Disability and Rehabilitation
Elham Mohammadkhani-Pordanjani, Carlyne Arnould, Parvin Raji, Noureddin Nakhostin Ansari, Scott Hasson
AIM: To develop a Persian version of ABILHAND-Kids and to determine its reliability and validity in Persian-speaking children with cerebral palsy (CP). METHOD: The ABILHAND-Kids questionnaire was translated into Persian language and cross-culturally adapted following guidelines. The Persian ABILHAND-Kids was administered to 50 parents of CP children. Among the 50 parents of CP children, 30 of them participated in a test-retest reliability phase. Fifty parents of healthy children participated for discriminative validity...
February 19, 2019: Disability and Rehabilitation
Lekeisha A Sumner, Richard Ormseth, Desiree R Azizoddin, Sarah R Ormseth, Taylor L Draper, Julia R Ayeroff, Geraldine Zamora-Racaza, Michael H Weisman, Perry M Nicassio
PURPOSE: Psychological and sociodemographic factors contribute to disability in systemic lupus erythematosus. Yet the pathways by which these factors influence disability remain unclear. The objective of this study was to evaluate a model examining socioeconomic status (SES), perceived stress, and depressive symptoms as determinants of lupus-related disability. METHODS: The sample included 134 patients receiving treatment at an academic hospital. Structural equation modeling examined the direct and indirect effects of SES (income, education, and subjective social status), perceived stress (Perceived Stress Scale), and depressive symptoms (Hospital Depression Anxiety Scale depression subscale) on disability (Lupus Patient-Reported Outcome measure Physical Health and Pain-Vitality subscales)...
February 18, 2019: Disability and Rehabilitation
Katrine M L Sauvé-Schenk, Mary Y Egan, Claire-Jehanne Dubouloz-Wilner, Elizabeth Kristjansson
PURPOSE: Low income is known to influence participation post stroke, but the process by which this occurs is poorly understood. METHODS: A qualitative multiple case study approach, focusing on the experience of returning to participation in personal projects among eight low-income francophone stroke survivors living in eastern Ontario (Canada). Data included semi-structured interviews with the stroke survivors and with their care partners, participant observations, assessment measures, and chart reviews...
February 14, 2019: Disability and Rehabilitation
Charlotte Simonÿ, Ingrid Charlotte Andersen, Uffe Bodtger, Regner Birkelund
BACKGROUND: To tailor future rehabilitation programmes for patients with chronic pulmonary obstructive disease, there is a need for more in-depth knowledge about what is essential to these patients and how they perceive their self-image while participating in rehabilitation. Therefore, this study aims to explore patients' experiences and perception of self-image during pulmonary rehabilitation. METHODS: Twenty-one patients were followed by participant observations during standard rehabilitation complicity supplemented with final individual interviews...
February 14, 2019: Disability and Rehabilitation
Ellen Backman, Mats Granlund, Ann-Kristin Karlsson
BACKGROUND: Everyday routines play a vital role in child functioning and development. This study explored health professionals' documentation of everyday life and health care during the first year following gastrostomy tube placement in children and the content of intervention goals. METHODS: The medical records of 39 children (median age 38 months, min-max: 15-192) in one region of Sweden were analysed. A content analysis approach was used with an inductive qualitative analysis supplemented by a deductive, quantitative analysis of documented intervention goals following the ICF-CY...
February 14, 2019: Disability and Rehabilitation
Duncan McKechnie, Julie Pryor, Murray J Fisher, Tara Alexander
AIM: To compare the rehabilitation of patients with brain and spinal cord injury in specialist rehabilitation units and non-specialist rehabilitation units in Australia over a 10-year period. METHOD: A retrospective cohort study design was used. Epidemiological descriptive analysis was used to examine inpatient rehabilitation data held in the Australasian Rehabilitation Outcomes Centre Registry Database at four discrete time points: 2007, 2010, 2013 and 2016. Data sets included patient demographics, length of stay and the Functional Independence Measure...
February 14, 2019: Disability and Rehabilitation
Fred A de Laat, Leo D Roorda, Jan H Geertzen, Clemens Rommers
PURPOSE: To assess the test-retest reliability of the Special Interest Group on Amputation Medicine Mobility Scale/Dutch Working Group on Amputations and Prosthetics, better known as SIGAM/WAP mobility scale, in persons with a lower-limb amputation. METHOD: Longitudinal study at the outpatient departments of a rehabilitation center and a university medical center. Persons with a lower-limb amputation, wearing a prosthesis, were assessed at the end of their multidisciplinary rehabilitation treatment twice, with a 3-week interval, by the same practitioner...
February 14, 2019: Disability and Rehabilitation
Katherine Milette, Brett D Thombs, Sébastien Dewez, Annett Körner, Sandra Peláez
PURPOSE: People with rare diseases must cope with many physical and psychological challenges; an endeavor that can be difficult to carry out without external support. The purpose of this study was to understand how patients with scleroderma perceive the social support they need and receive from close relationships to better manage their disease. METHOD: Four focus groups with patients (N = 19) were conducted. A semi-structured topic guide was used. Discussions were recorded and transcribed, and thematic analysis was performed...
February 14, 2019: Disability and Rehabilitation
Dae-Hyun Kim, Suhn-Yeop Kim
PURPOSE: Forward head posture is identified as the flexion of the lower cervical spine along with the extension of the upper cervical spine, with an overall increase in the cervical curve. This study aimed to compare the immediate effect of upper-cervical level and cervicothoracic junction level manual therapy on head posture, cervical range of motion and muscle activity of the subjects with forward head posture. METHODS: A total 22 subjects with chronic neck pain (numeric pain rating scale >3, forward head posture: cranio-vertebral angle <51°) participated in the study and were randomly allocated into the upper-cervical (n = 11) and cervicothoracic junction (n = 11) groups...
February 13, 2019: Disability and Rehabilitation
Yi-Chang Chen, Keh-Chung Lin, Ching-Yi Wu, Chen-Jung Chen, Yu-Wei Hsieh
OBJECTIVES: The purpose of this study was to identify determinants within the International Classification of Functioning, Disability and Health as a conceptual framework regarding the quality of life of older long-term care facility residents. METHODS: A questionnaire-based cross-sectional design was conducted. All participants (n = 210) completed a questionnaire that included the Sheltered Care Environmental Scale, the Beck Depression Inventory, the Short Physical Performance Battery, the Mini-Mental State Examination, the World Health Organization Disability Assessment Schedule, and the World Health Organization Quality of Life Scale...
February 11, 2019: Disability and Rehabilitation
Kyla Z Donnelly, Shari Goldberg, Debra Fournier
PURPOSE: To explore participants' experiences in a group-based yoga with psychoeducation intervention designed to facilitate community integration for people with traumatic brain injury and their caregivers. MATERIALS AND METHODS: We conducted semi-structured interviews with 13 people with traumatic brain injury and three caregivers who had completed LoveYourBrain Yoga, a 6-session, manualized, group-based yoga intervention that incorporates breathing exercises, yoga, meditation, and psychoeducation...
February 11, 2019: Disability and Rehabilitation
Caroline Elfassy, Vasiliki Betty Darsaklis, Laurie Snider, Cynthia Gagnon, Reggie Hamdy, Noemi Dahan-Oliel
BACKGROUND: Arthrogryposis multiplex congenita is a term used to describe congenital contractures in at least two body parts with an overall prevalence of 1 in 3000 live births. It is often caused by lack of fetal movement in utero and presents as contractures of varying severity, which may affect the upper and lower extremities, the spine and jaw. Currently, no practice recommendations exist to inform best clinical practice for arthrogryposis multiplex congenita. PURPOSE: To identify the needs surrounding rehabilitation as experienced by youth with arthrogryposis multiplex congenita, caregivers, and clinicians and to propose solutions to develop family- and client-centred rehabilitation recommendations...
February 11, 2019: Disability and Rehabilitation
D Joshua Marino, Randy Williams, Alicia Koontz, Rory A Cooper
BACKGROUND: American Student Placements and Internships in Rehabilitation Engineering is founded on the principal of sparking the interest in a new generation of rehabilitation engineering scientists to transform the lives of older adults and people with disabilities. Each year a minimum of 10 students were enrolled. METHODS: The internship runs for 10 weeks and activities center on developing excitement about technology and engineering and understanding the principles and processes of conducting rehabilitation engineering research...
February 11, 2019: Disability and Rehabilitation
Narinder Kapur
Paradoxical enhancement and paradoxical recovery of function after brain injury harmonize well with the concept of "ultrabilitation" and its focus on novel forms of flourishing in rehabilitation settings. I consider three sets of paradoxes which may impact on brain injury rehabilitation. Firstly, I consider post-traumatic growth after brain injury and its key determinants. Secondly, I review the role of illusions in rehabilitation and the paradox that some clinical conditions may be improved by invoking perceptual distortions...
February 11, 2019: Disability and Rehabilitation
Karen A Sullivan, Sherrie-Anne Kaye, Hannah Blaine, Shannon L Edmed, Susanne Meares, Kalina Rossa, Catherine Haden
BACKGROUND: To evaluate the evidence for psychological treatments for persistent postconcussion symptoms following mild traumatic brain injury. There is scant evidence from limited clinical trials to direct the psychological management of persistent symptoms. METHOD: Databases were searched for studies that: (1) included adults (≥ aged 16 years) following injury (from any cause); (2) tested interventions for postconcussion symptoms after the acute injury period (e...
February 11, 2019: Disability and Rehabilitation
Mark J W van der Oest, Jarry T Porsius, Joy C MacDermid, Harm P Slijper, Ruud W Selles
BACKGROUND: The aim of this study is to assess the viability of a decision tree version of an often used questionnaire to measure wrist pain and disability, the Patient Rated Wrist Evaluation. METHODS: Patient Rated Wrist Evaluation scores were collected from a cohort of 10394 patients who are part of a routine outcome measurement system. A decision tree version of the Patient Rated Wrist Evaluation (PRWE) was created. The intraclass correlation was used to evaluate the inter-version reliability between the original PRWE and the decision tree version...
February 10, 2019: Disability and Rehabilitation
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