journal
https://read.qxmd.com/read/38613411/perspectives-of-people-with-myasthenia-gravis-on-physical-activity-and-experience-of-physical-activity-advice-from-health-professionals-in-the-australian-context-a-qualitative-study
#1
JOURNAL ARTICLE
Tahlia Alsop, Marianna Cassimatis, Katrina L Williams, Sjaan R Gomersall
PURPOSE: Physical activity is an important modifiable determinant of health. There has been a historical aversion to movement in people with myasthenia gravis (MG) due to the pathophysiology of the disease, however, research suggests engagement in physical activity is safe and does not exacerbate symptoms. There are currently no studies investigating the qualitative perspectives of people with MG on physical activity. The aim of this study was to explore perceptions of physical activity, barriers, enablers, and participants' experiences of physical activity advice from health professionals...
April 13, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38613370/physical-performance-tests-have-excellent-reliability-in-frail-and-non-frail-patients-with-prostate-cancer
#2
JOURNAL ARTICLE
Özlem Feyzioğlu, Selvi Dinçer, Ayşem Ecem Özdemir, Özgül Öztürk
PURPOSE: Our aim was to investigate the test-retest reliability of the 2-min walk test (2MWT), timed up and go test (TUG), and five times sit-to-stand test (FTSST) in prostate cancer (PC) patients. METHODS: This study was conducted with 73 patients who were classified into two groups as frail and non-frail determined by the Geriatric-8 questionnaire. Patients performed the 2MWT, TUG, and FTSST tests for two times. The test-retest reliability of the 2MWT, TUG, and FTSST was assessed by calculating the intraclass correlation coefficient (ICC)...
April 13, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38606527/impact-of-paediatric-cochlear-implantation-on-family-life-a-conceptual-framework-informed-by-parents
#3
JOURNAL ARTICLE
Chané de Beer, Rebecca J Bennett, Robert H Eikelboom, Talita le Roux
PURPOSE: While the impact of paediatric cochlear implantation on parents and siblings are recognised, limited evidence exists regarding the effect of paediatric cochlear implantation on the entire family life (e.g., routine interactions, family activities). This study aimed to describe the impact of paediatric cochlear implantation on family life as perceived by parents, using concept mapping. MATERIALS AND METHODS: Parents of paediatric cochlear implant (CI) recipients ( n  = 29) participated in this concept mapping study to generate, group, and rate statements regarding the impact of paediatric cochlear implantation on family life...
April 12, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38596894/online-awareness-a-concept-analysis-and-review-of-assessment-approaches-for-adults-with-neurological-conditions
#4
REVIEW
Danielle Sansonetti, Jennifer Fleming, Freyr Patterson, Natasha A Lannin, Joan Toglia
PURPOSE: Self-awareness is a multifaceted phenomenon that comprises two main concepts: general awareness and online awareness. The latter is an emerging concept that requires further consensus on its definition. The aim of this paper is to define the key components of online awareness and identify approaches for measuring this concept for adults with neurological conditions. MATERIALS AND METHODS: Concept analysis using Rodgers' evolutionary method was used to systematically review and summarise relevant literature...
April 10, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38596871/representation-of-child-and-youth-participation-within-the-unified-medical-language-system-umls
#5
JOURNAL ARTICLE
Vera C Kaelin, Dianna L Bosak, Shivani Saluja, Denis Newman-Griffis, Andrew D Boyd, Mary A Khetani
PURPOSE: To examine (1) how much participation is represented in the benchmark Unified Medical Language System (UMLS) resource, and (2) to what extent that representation reflects the definition of child and youth participation and/or its related constructs per the family of Participation-Related Constructs framework. MATERIALS AND METHODS: We searched and analysed UMLS concepts related to the term "participation." Identified UMLS concepts were rated according to their representation of participation (i...
April 10, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38592071/lifespace-and-occupational-participation-following-acquired-brain-injury-during-driving-disruption-a-mixed-methods-study
#6
JOURNAL ARTICLE
Louise Bassingthwaighte, Louise Gustafsson, Matthew Molineux
PURPOSE: To examine the lifespace of participants referred for occupational therapy driving assessment following acquired brain injury, to understand how, why, where and with whom access and participation in community-based occupations is occurring during the period of driving disruption. MATERIALS AND METHODS: The mixed methods, convergent research design utilised a travel diary and Lifespace Mobility Assessment-Composite quantitative elements and semi-structured interviews analysed qualitatively with an interpretive description lens...
April 9, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38592042/injured-worker-participation-in-assessment-during-the-acute-phase-of-workers-compensation-rehabilitation-a-scoping-review
#7
REVIEW
Olwen Anderson, Vanette McLennan, Nicholas Buys, Christine Randall
PURPOSE: Rates of return to work (RTW) are declining in the Australian workers compensation system alongside significant economic and social costs, disputes, and secondary psychological injury. Non-medical assessment of workplace injuries now considers psychosocial and workplace factors, and worker participation in the assessment process is limited. This scoping review examines studies regarding non-medical assessment during the acute phase of rehabilitation in terms of costs, disputes, secondary psychological injury, and worker participation...
April 9, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38591988/identification-of-subgroups-of-patients-with-oesophageal-cancer-based-on-exercise-intensity-during-prehabilitation
#8
JOURNAL ARTICLE
Elja A E Reijneveld, Mitchel Griekspoor, Jaap J Dronkers, Ad Kerst, Jelle P Ruurda, Cindy Veenhof
PURPOSE: To identify subgroups of patients with oesophageal cancer based on exercise intensity during prehabilitation, and to investigate whether training outcomes varied between subgroups. MATERIALS AND METHODS: Data from a multicentre cohort study were used, involving participants following prehabilitation before oesophagectomy. Hierarchical cluster analysis was performed using four cluster variables (intensity of aerobic exercise, the Borg score during resistance exercise, intensity of physical activity, and degree of fatigue)...
April 9, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38591970/managing-the-move-from-assisted-to-independent-living-an-inclusive-qualitative-study-among-adults-with-cerebral-palsy
#9
JOURNAL ARTICLE
Lori Rosenberg, Shira Zecharia, Yafit Gilboa, Anat Golos
PURPOSE: To understand aspects important to adults with severe cerebral palsy (CP) as they prepare to move from assisted to independent living and to create an appropriate intervention. MATERIALS AND METHODS: An inclusive qualitative study was conducted together with adults with severe CP (Gross Motor Function Classification Scale 4-5) preparing to move to independent living. It included semi-structured interviews which were recorded, transcribed, and analyzed by two occupational therapists to create themes...
April 9, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38591714/educating-for-supported-decision-making-and-shared-decision-making-a-scoping-review-of-educational-design-and-outcomes-for-education-and-training-interventions
#10
JOURNAL ARTICLE
Heath Pillen, Stacie Attrill, Alinka Fisher, Sabrina Forte, Chris Brebner, Sally Robinson
PURPOSE: To characterise existing knowledge about the design and learning outcomes of education and training programs for supported or shared decision making. MATERIALS AND METHODS: A scoping review was performed to identify academic and grey literature, published between January 2006 and February 2022, that reported on the design and/or learning outcomes of supported or shared decision making education or training programs. Eligible literature was mapped across domains of educational design and Kirkpatrick's hierarchy of learning effectiveness, and then qualitatively synthesised using cross-case analysis...
April 9, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38591611/cardiopulmonary-resuscitation-and-basic-life-support-guidelines-for-people-with-disability-a-scoping-review
#11
REVIEW
Elisha Deegan, Peter Lewis, Nathan J Wilson, Laynie H Pullin
PURPOSE: To explore literature, policies or procedures available to care providers on how to deliver CPR and BLS to people with a disability, for whom the current standard guidelines are not fit for purpose. MATERIAL AND METHODS: A scoping review was conducted using four databases, namely, CINHAL, PubMed, Scopus, Medline and Google Scholar. Keywords used included, disab*, wheelchairs, cardiopulmonary, resuscitation, "basic life support", life support care, and bystander CPR...
April 9, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38591266/cross-cultural-adaptation-validity-and-reliability-of-the-japanese-version-of-abilhand-kids-for-children-with-cerebral-palsy-using-rasch-measurement-model
#12
JOURNAL ARTICLE
Sayaka Katori, Nobuaki Himuro, Yukihiro Kitai, Ryo Tanabe, Hirofumi Ohnishi
PURPOSE: The aim of this study was to develop the Japanese version of the ABILHAND-Kids and to examine its psychometric properties for Japanese children with cerebral palsy (CP). METHODS: The experimental version of 75 items was developed using forward-backward translation method. Parents of 137 children with CP answered it. Their responses were analyzed to successive items, and psychometric properties of the final version were investigated through the Rasch measurement model...
April 9, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38588585/effects-of-home-based-exercise-on-the-health-of-patients-with-fibromyalgia-syndrome-a-systematic-review-of-randomized-clinical-trials
#13
REVIEW
Loiane Cristina de Souza, Guilherme Torres Vilarino, Alexandro Andrade
PURPOSE: Analyze the effects of interventions with home-based physical exercise on the health of patients with fibromyalgia and the characteristics of the protocols used. METHODS: This systematic review was registered at PROSPERO and followed the PRISMA recommendations. Searches were performed in six electronic databases. Eligibility criteria for the selection of studies were compiled using the acronym PICOS. Data were extracted and checked in a Microsoft Excel® spreadsheet and the risk of bias was assessed using the Rob 2 tool...
April 8, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38587056/-stroke-65-plus-continued-active-life-a-randomized-controlled-trial-of-a-self-management-neurorehabilitation-intervention-for-elderly-people-after-stroke
#14
JOURNAL ARTICLE
Hanne Pallesen, Sedsel Kristine Stage Pedersen, Susanne Lillelund Sørensen, Erhard Trillingsgaard Næss-Schmidt, Iris Brunner, Jørgen Feldbæk Nielsen, Simon Svanborg Kjeldsen
PURPOSE: Post-stroke sequelae among elderly often lead to a more inactive life while carrying a risk of overburdening close relatives. The objective of the present study was to determine if a novel self-management neuro-rehabilitation intervention added to usual treatment for people with stroke over the age of 65 years improved their self-efficacy. METHODS: This randomised controlled trial included participants two weeks before discharge from subacute rehabilitation...
April 8, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38571404/impact-of-the-end-pj-paralysis-interventions-on-patient-health-outcomes-at-the-participating-hospitals-in-alberta-canada
#15
JOURNAL ARTICLE
Gurech James Wai, Zihang Lu, Sudeep Gill, Isabel Henderson, Mohammad Auais
PURPOSE: Multiple hospitals in Alberta implemented the End PJ Paralysis - a multicomponent inpatient ambulation initiative aimed at preventing the adverse physical and psychological effects patients experience due to low mobility during admission. To inform a scale-up strategy, this study assessed the impact of the initiative based on select process and outcome measures. MATERIALS AND METHODS: Clinical and administrative data were obtained from the hospital Discharge Abstract Database, Research Electronic Data Capture (Redcaps), and Reporting and Learning System for Patient Safety...
April 4, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38563712/how-has-body-image-been-evaluated-among-people-with-lower-limb-loss-a-scoping-review
#16
REVIEW
Kristin Nugent, Atharv Joshi, Ricardo Viana, Michael W Payne, Janelle Unger, Susan W Hunter
PURPOSE: Lower limb loss can result in an altered body image, leading to changes in self-esteem, mental health and quality of life. This scoping review explored how body image has been evaluated among people with lower limb loss. MATERIALS AND METHODS: Five databases (Embase, Medline, PsychINFO, CINHAL, and Nursing and Allied Health Database) were searched from inception until March 19, 2023. Inclusion criteria: 1) people with lower limb loss; 2) evaluated a body image outcome or theme; and 3) a qualitative, quantitative or mixed methods design...
April 2, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38557388/disability-acceptance-and-depressive-symptoms-the-moderating-role-of-social-support
#17
JOURNAL ARTICLE
Gum-Ryeong Park, Sujeong Park, Jinho Kim
Purpose: This study aims to estimate (a) the relationship between disability acceptance and depressive symptoms, and (b) how the quality and quantity of social support might moderate the link between disability acceptance and depressive symptoms. Materials and methods: The data for this study included information from 5165 individuals with disability who participated in 3 waves of the Disability and Life Dynamic Panel spanning years 2018 to 2020. This study employed fixed effects models to estimate the association between disability acceptance and depressive symptoms...
April 1, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38557249/electrotherapy-in-stroke-rehabilitation-can-improve-lower-limb-muscle-characteristics-a-systematic-review-and-meta-analysis
#18
REVIEW
Ruben Debeuf, Daan De Vlieger, Arne Defour, Karen Feyen, Stefania Guida, Lotte Cuypers, Mahyar Firouzi, An Tassenoy, Eva Swinnen, David Beckwée, Lynn Leemans
PURPOSE: This review assesses the effect of electrotherapy (e.g. functional electrical stimulation (FES), motor and sensor therapeutic electrical stimulation (TES)) on muscle strength and skeletal muscle characteristics in individuals post-stroke compared to conventional or sham therapy. METHODS: A systematic literature search was conducted in MEDLINE, SCOPUS, and Web of Science, focusing on randomized controlled trials investigating the effect of electrotherapy...
April 1, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38555736/facioscapulohumeral-muscular-dystrophy-health-index-japanese-translation-and-validation-study
#19
JOURNAL ARTICLE
Haruo Fujino, Masanori P Takahashi, Harumasa Nakamura, Chad R Heatwole, Hiroto Takada, Satoshi Kuru, Katsuhisa Ogata, Kiyoka Enomoto, Yuto Hayashi, Osamu Imura, Tsuyoshi Matsumura
PURPOSE: The Facioscapulohumeral Muscular Dystrophy Health Index (FSHD-HI) is a patient-reported outcome measure developed for patients with FSHD. This study aimed to translate the FSHD-HI into Japanese (FSHD-HI-J), evaluate cultural adaptation, and examine its psychometric properties. MATERIALS AND METHODS: We created two forward translations, integrated them into a single Japanese version, and evaluated the back-translated version of the FSHD-HI. After finalizing the translation and cultural adaptation, we conducted a survey of 66 patients with FSHD to examine the reliability and validity of the FSHD-HI-J...
March 31, 2024: Disability and Rehabilitation
https://read.qxmd.com/read/38551102/what-are-the-experiences-of-people-with-motor-and-sensory-functional-neurological-disorder-a-systematic-review-and-thematic-synthesis-of-qualitative-studies
#20
REVIEW
Cate Bailey, Arnas Tamasauskas, Abigail Bradley-Westguard, Peter Gilli, Norman Poole, Mark J Edwards, Niruj Agrawal, Timothy Nicholson
PURPOSE: Functional neurological disorders are common, highly stigmatised and associated with significant disability. This review aimed to synthesise qualitative research exploring the experiences of people living with motor and/or sensory FND. Identifying their needs should inform service development, education for healthcare professionals and generate future research questions. METHOD: Five databases were systematically searched (Medline, PsychInfo, Web of Science, Embase and Cinahl) in November 2022, updated in June 2023...
March 29, 2024: Disability and Rehabilitation
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