Shona Goldsmith, Hayley Smithers-Sheedy, Nihad Almasri, Guro L Andersen, Leanne Diviney, Ecaterina Bufteac Gincota, Kate Himmelmann, Israt Jahan, Emma Waight, Sarah McIntyre
AIM: To provide a description of cerebral palsy (CP) registers globally, identify which aim to report on CP epidemiology, and report similarities and differences across topics of importance for the sustainability and collaboration between registers. METHOD: Representatives of all known CP registers globally (n = 57) were invited to participate. The online survey included 68 questions across aims, methodologies, output/impact, and stakeholder involvement...
November 9, 2023: Developmental Medicine and Child Neurology