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Archives of Disease in Childhood

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https://read.qxmd.com/read/31101620/children-organ-donation-and-islam
#1
LETTER
Mikail Aktas, Gurch Randhawa, Joe Brierley
No abstract text is available yet for this article.
May 17, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31101619/living-with-fragile-x-syndrome
#2
(no author information available yet)
No abstract text is available yet for this article.
May 16, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31097531/votes-for-a-better-future
#3
Neena Modi
No abstract text is available yet for this article.
May 16, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31097530/are-patients-fed-directly-into-the-jejunum-at-risk-of-copper-deficiency
#4
Harriet Barraclough, Katarzyna Cooke
No abstract text is available yet for this article.
May 16, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31097529/paediatric-heart-transplantation-an-update
#5
REVIEW
Zdenka Reinhardt
Heart transplantation is a standard treatment for selected paediatric patients with end-stage heart disease. With improvement in surgical techniques, organ procurement and preservation strategies, immunosuppressive drugs, and more sophisticated monitoring strategies, survival following transplantation has increased over time. However, rejection, infection, renal failure, post-transplant lymphoproliferative disease and post-transplant cardiac allograft vasculopathy still preclude long-term survival. Therefore, continued multidisciplinary scientific efforts are needed for future gains...
May 16, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31097528/incidence-of-disorders-of-sexual-development-in-neonates-in-ghana-prospective-study
#6
Emmanuel Ameyaw, Serwah Bonsu Asafo-Agyei, Ieuan A Hughes, Margaret Zacharin, Jean-Pierre Chanoine
OBJECTIVE: The incidence of disorders of sexual development (DSD) is unknown in sub-Saharan Africa. We describe the characteristics and incidence of DSD in a cohort of infants born in Ghana. DESIGN: Trained research assistants performed systematic genital examination at birth. All infants with suspected abnormal genitalia were further examined by a paediatric endocrinologist. SETTING: Komfo Anokye Teaching Hospital, Kumasi, Ghana. PATIENTS: Consecutive infants born in a single centre over a 1-year period (May 2014 to April 2015)...
May 16, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31085506/preventing-child-deaths-what-do-administrative-data-tell-us
#7
Ania Zylbersztejn, Ruth Gilbert, Pia Hardelid
No abstract text is available yet for this article.
May 13, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31079075/assessing-feasibility-of-routine-identification-tools-for-mental-health-disorder-in-neurology-clinics
#8
Sophie D Bennett, Isobel Heyman, Anna E Coughtrey, Marta Buszewicz, Sarah Byford, Caroline J Dore, Peter Fonagy, Tamsin Ford, Rona Moss-Morris, Terence Stephenson, Sophia Varadkar, Erin Walker, Roz Shafran
No abstract text is available yet for this article.
May 11, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31079074/parents-experiences-of-requests-for-organ-and-tissue-donation-the-value-of-asking
#9
Anne-Sophie Darlington, Tracy Long-Sutehall, Duncan Randall, Claire Wakefield, Victoria Robinson, Joe Brierley
OBJECTIVE: A proportion of children die, making them potentially eligible to be organ/tissue donors. Not all are approached for donation, and experiences of those parents are not well understood. The objective was to investigate to what extent organ and tissue donation (OTD) is discussed as part of end-of-life care and to explore parents' and healthcare professionals' (HCPs) experiences. DESIGN: A retrospective qualitative study. SETTING: Multicentre study with participants recruited through two neonatal intensive care units (ICUs), two paediatric ICUs, a cardiac ICU and a children's hospice...
May 11, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31079073/academic-behavioural-and-quality-of-life-outcomes-of-slight-to-mild-hearing-loss-in-late-childhood-a-population-based-study
#10
Jing Wang, Jon Quach, Valerie Sung, Peter Carew, Ben Edwards, Anneke Grobler, Lisa Gold, Melissa Wake
OBJECTIVE: To investigate the associations of hearing thresholds and slight to mild hearing loss with academic, behavioural and quality of life outcomes in children at a population level. METHODS: Design and participants: children aged 11-12 years in the population-based cross-sectional Child Health CheckPoint study within the Longitudinal Study of Australian Children. Audiometry: mean hearing threshold across 1, 2 and 4 kHz (better and worse ear); slight/mild hearing loss (threshold of 16-40 decibels hearing loss (dB HL))...
May 11, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31079072/adherence-to-metformin-is-reduced-during-school-holidays-and-weekends-in-children-with-type-1-diabetes-participating-in-a-randomised-controlled-trial
#11
Catherine Leggett, Lynne Giles, Jemma Jay Angela Anderson, Matthew Doogue, Jennifer Couper, Alexia Sophie Pena
BACKGROUND: Non-adherence to treatment in childhood chronic illness has serious consequences for health and healthcare costs. Accurate detailed objective data on adherence are minimal in this age group. OBJECTIVE: To evaluate medication adherence using electronic monitoring systems in children with type 1 diabetes (T1D). DESIGN: A cohort study of 90 T1D children (aged 13.6±2.5 years, 41 males) from two paediatric diabetes clinics, participated in a 12-month double-blind, randomised, placebo-controlled trial (1:1 allocation)...
May 11, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31079071/impact-of-hospitalisation-of-children-on-parental-dietary-habits-a-qualitative-study
#12
Kirstyn Church, David Campbell, Vanessa Halliday
OBJECTIVE: To explore how prolonged hospitalisation of a child with a neurological condition influences the dietary habits of parents, taking account of their attitudes and perceptions of this experience. DESIGN: Qualitative study using semi-structured interviews and inductive thematic analysis. SUBJECTS: Fifteen parents of children (aged 2-16 years) with a neurological condition resulting in prolonged periods of hospitalisation were recruited...
May 11, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31079070/functional-outcomes-in-children-with-anatomically-repaired-transposition-of-the-great-arteries-with-regard-to-congenital-ventricular-septal-defect-and-coronary-pattern
#13
Anna-Luisa Häcker, Barbara Reiner, Renate Oberhoffer, Alfred Hager, Peter Ewert, Jan Müller
OBJECTIVE: Despite decreasing mortality, functional impairments in children with transposition of the great arteries (TGA) are still a concern. This study analyses health-related physical fitness (HRPF), arterial stiffness and health-related quality of life (HRQoL) in children with anatomically repaired TGA regarding congenital ventricular septal defect (VSD) and coronary patterns. PATIENTS AND METHODS: 68 children with anatomically repaired TGA with or without VSD (12...
May 11, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31072875/tuberous-sclerosis-and-cutaneous-stigmata-ever-expanding-spectrum
#14
Priyanka Madaan, Lokesh Saini, Naveen Sankhyan, Dipankar De, Shivan Kesavan, Swetlana Mukherjee, Kim Vaiphei, Chirag K Ahuja
No abstract text is available yet for this article.
May 9, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31068317/coproduction-and-coproducing-research-with-children-and-their-parents
#15
Kristin Liabo, Helen Roberts
No abstract text is available yet for this article.
May 8, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31023708/looking-after-tom-brown-the-former-experience-of-infectious-disease-in-britain-s-public-schools
#16
Philip Mortimer
No abstract text is available yet for this article.
April 25, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31023707/research-priorities-for-european-paediatric-emergency-medicine
#17
Silvia Bressan, Luigi Titomanlio, Borja Gomez, Santiago Mintegi, Alain Gervaix, Niccolo Parri, Liviana Da Dalt, Henriette A Moll, Yehezkel Waisman, Ian K Maconochie, Rianne Oostenbrink
OBJECTIVE: Research in European Paediatric Emergency Medicine (REPEM) network is a collaborative group of 69 paediatric emergency medicine (PEM) physicians from 20 countries in Europe, initiated in 2006. To further improve paediatric emergency care in Europe, the aim of this study was to define research priorities for PEM in Europe to guide the development of future research projects. DESIGN AND SETTING: We carried out an online survey in a modified three-stage Delphi study...
April 25, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31023706/colonoscopic-leopard-sign-in-chronic-granulomatous-disease
#18
Elise Costenoble, Christophe F Chantrain, Noella Bletard, Stephanie Colinet, Olivia Bauraind
No abstract text is available yet for this article.
April 25, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31023705/bone-density-in-children-what-are-we-measuring
#19
REVIEW
Nick Shaw, Nicola Crabtree
The measurement of bone density is a frequent request in the assessment of children with concerns about bone health due to chronic disease or recurrent fractures. Dual energy X-ray absorptiometry (DXA) remains the recommended modality and is widely available. However, the interpretation and reporting of results in growing individuals needs to be undertaken by individuals who are familiar with scanning children and the potential pitfalls.
April 25, 2019: Archives of Disease in Childhood
https://read.qxmd.com/read/31005897/national-registry-for-sudden-unexpected-deaths-of-infants-and-children-in-england-why-do-we-need-one-and-do-families-want-one
#20
REVIEW
Emma Matthews, Peter Blair, Sanjay Sisodiya, Stuart Jones, Neil Sebire, Elijah Behr, Peter Fleming
The sudden and unexpected death of an infant or child is devastating. An inability to explain why an infant or child died is difficult to accept for both families and professionals. No reliable national dataset exists to estimate precisely how many infants and children die unexpectedly each year in England. This lack of accurate epidemiological data belies the scale of this public health problem. Detailed controlled observational studies of infant deaths identifying risk factors and providing evidence-based advice for parents has seen a dramatic reduction in incidence over the last 30 years by almost 80% but greater knowledge is needed if future deaths of infants and older children are to be prevented and families optimally supported...
April 20, 2019: Archives of Disease in Childhood
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